Videos

Patient:innen erklären, warum sie denken, dass es für alle wichtig ist, die eigenen Gesundheitsdaten für die Forschung zu teilen.

Diese Video Interviews stammer von einigen europäischen Organisationen, mit denen Data Saves Lives zusammen arbeitet.

Interviews wurden vom European Institute for Innovation Through Health Data durchgeführt und sind in englischer Sprache verfügbar.

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Mitchell Silva

“Patients are really willing to donate data but there is always the aspect of trust”

Robert Johnstone

“I fully support better use of health data for research … provided that assurances can be given that the data are well protected”

Hanna Svensson

“We need to co-operate much more in-between different parts of the health care system but also between the health care system and patients”

Interviews from UseMYdata

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Nicole Larkin
Nicole Larkin

“Making drugs improves treatment, but data should have controls around it”

Margaret Ticehurst
Margaret Ticehurst

“I think everyone should give [their data] willingly”

Christie Allmark
Christie Allmark

“I want my data to be used for the benefits of research”

Gefördert vom 01.02.2023 bis 31.12.2023