Surveys show that members of the public are concerned about what they read and hear about data breaches. People are therefore sometimes anxious about how well their health data can be securely stored and communicated where it is needed.

It is expected by patients that researchers who are given access to data in order to conduct research will protect the data with strong security measures, and only use the data for the purposes that are permitted.

There are a number of vitally needed healthcare improvements that are developed by different organisations working together.